Saturday, November 3, 2007

Sorely Misunderstood

Chronic illnesses - wow! Please entertain me as I take a walk through memory lane...back in 2002 I ended up in a fetal position not being able to move or talk or nothing. My good friend, Susie, drove me to the Doctor where both he and she looked at me with great concern and amazement. He (my doctor) I must say was God sent as was my faithful companion-friend. He put me through tests and specialists from A through Z. The conclusion..."Fibromyalgia", fibe-what??? I had never heard of this term nor its implications. Because God has made me the way I am, I read and educated myself in this "new", at least to me, term/disease. I won't bore you with the rest of the details, we could be here forever. Let's us come back to the here and now. This past week I haven't been feeling too spiffy, but then again what's new. I'm going about my week getting progressively worse. I do all the things I am used to doing to calm or soothe my ailments, but I am still getting worse. By Thursday, I can't hardly swallow, my chest feels like I have an elephant on top of it and my breathing is getting really difficult. In addition to all this I am getting progressively weaker. But the trooper that I am...I keep going with ALL my duties. By this time my hubby is "TELLING" me to get in to see the doctor. I had/have already made my mind the no-more-doctor-appointments-for-me. In fact, not to long ago I told one of my friends that I would not be going in to see the doctor unless I passed-out and had to be taken by an ambulance. Well, yesterday, was such a day, minus the ambulance. My hubby drove me to the doctor (which I already had an appointment, do to the encouraging of loved ones around me). I was sweating, my tongue was going numb and rolling, my face was tingly as if falling asleep, my left arm was limp and I was slowly going under. We are at the doctors...ekg, proving, checking, etc. The nurse-practitioner was absolutely belittling. I was made to feel like a hypochondriac - cause of course "NOTHING", DID I SAY NOTHING...showed up on the tests. Gave me some antacids (which I have been taking at home already) sent me to get bloodwork and x-ray of my chest (which I know will show NOTHING) and home I go to my daughter go is mad cause she is bored to death and Mom is playing sick (sorry I deviated there for a while). But you know what this triggered in my mind? I remembered my sister. My sister has already passed away, but I remember when she was alive, she never really felt good. I used to think, "are you sick again?" "now what is wrong?" (yeah, same attitudes I get now). In fact, the "regular" doctors sent her to a psychiatrist/psychologist cause "they" couldn't figure her out. The psychiatrist/psychologist put her on anti-depressants cause they couldn't figure out. In fact, they would tell her that she needed to get a job to get her mind busy. If anyone, was a hard worker, it was my sister. Maybe not on a "official" job site, but she worked a whole lot at home. She took care of all of us...and that my friend was a full-time joy with lots of overtime. She worked 24/7. I'm saddened at the fact that my sister did not have what the Lord has allowed me, in His grace and mercy, to have. I have this intimate-personal-relationship with My Jesus, who comforts me and reassures me that "it is not all in my head", "I am not crazy", "I am not making it up". O God, that my sister would have had this. Yet I know that He was and is the same yesterday, today and forever. He was and is from the beginning. And He was there for my sis. He is not a mean God, but a God of mercy and grace. He is and was gentle and loving. When I don't understand, I will trust in YOU. When nothing makes sense, I will trust in YOU. He will make ALL things beautiful in His time. O the depths of the riches, both of the power and wisdom of God, how unsearchable are His judgments and His ways past finding out. For who has known the mind of the Lord, and who has become His counselor? Who has first given to Him, it shall be repaid to him.

May You o God gives us understanding, gives us compassion, give us sensibility. I don't need to understand...more of YOU and less of me. YOU will increase, I will decrease. In my weakness, YOU are strong.

3 comments:

Anonymous said...

Dear Leti,

Laura's Friend Nettie here to tell you that I understand. I have been suffering from Endometriosis for most of my life. Endo is one of the most perplexing diseases very similar to fybro. I just got off the phone yesterday with a sister in the Lord who has fybro. I never knew how much the fybro could paralyze a person from wanting to simply live a normal life.
Before I found out that I had endo. I was very sick and always struggled with depression. I still due to an extent. Many people would give me the wrong counsel saying that I must be in sin if I am depressed, or that I complain to much. But now that I know what I have, I am not so self conscious. I have also learned to forgive others if they are unknowingly insensitive. I depend on the Lord every step of the way. No one understand like Jesus. I am naturally independent and self sufficient. But with endo, home schooling, and having a very slow pased life has brought me much more closer to my Lord. I have learned a lot of lessons, and have more to learn. I can't wait to run into another person with a similar affliction so that I can comfort them with the comfort that God has given me through my trial. My scripture for my suffering is the same. In my weakness he is strong. There are many more that I cling to.
May the Lord send people your way that you can minister to as you endure fybro. May the Lord BE your strength, and May he open the eyes and hearts of your precious family and friends around you, to see your suffering. To also dwell with you in understanding so that they can help if it is the Lords will. If not May the Lord give you patience and longsuffering.

love,
Nettie

P.s. I hope that it is ok if I write to you. I love all of your coments at Laura's blogg. You bear so much fruit of knowing our Lord.

Leti said...

Hi Nettie, thank you for your encouragement. I'd love for you to post comments on my blog. The gifts of the Body are to be used to comfort and encourage each other. Thanks again.

lulu said...

Hi, lettuce
I'm so sorry to hear that you had a flare up.This fybro thing is so ugly.
You made me remember how I used to sometimes ignore my mom,when she would say she was feeling sick.
It made me go back to the IFS.if I would of know about fybro,if mom would of been here,if mom known the lord,well so many things that I can't do anything about now.I can only say that even though you get so sick, you are a great example of what we can do with god on our side,and the person you are because of him.I love you.



Therefore we do not lose heart.though outwardly we are wasting away,yet inwardly we are being renewed day by day.
2corinthians4:16